I went to another appointment in Baltimore yesterday. Another 12 hour day. I got very good news this time!! My optic nerve swelling (pappiledema) looks the best it has ever looked since I have had this darned illness in three years!! Yay!! So, I get to get off of all of my diuretics and see how things go with just the shunt. My shunt is DOING ITS JOB!! I am very excited!! This is the best news I have gotten since all of this started three years ago. It has been a long, long journey. I didn't get answers to all of my questions about why I have the shunt I have and why they had errors in my medical charts, but it seems like whatever they are doing, they are doing it correctly! I saw the neuro-opthalmologist. Unfortunately, the neurologist that I saw last time never called me back. Or his office didn't anyway. There was an addendum in my charts stating the correct type of shunt I have, but not explaining if there were any errors in the type of shunt inserted. I waited two weeks for them to call me back. No phone call. So I decided to see if the neuro-opthalmologist would have any better answers. He didn't. I am happy, though that my symptoms are alot better. I only get an occasional headache, not to the degree that I used to get them, and some fatigue. I also have alot of memory problems and what I call a "stupid brain". Don't know what I am going to do about that. I guess that could come from any of my illnesses. I live life one day at a time, though, and take it as I get it, trying to live in the moment.
When we were driving home from Baltimore yesterday we saw the most magnificent and brilliant double rainbow. It was the most beautiful rainbow I have ever seen. I was upset as I DID NOT BRING MY CAMERA! I almost did, but I was running a couple of minutes late and thought, "I won't see anything today worth taking. I don't have time to insert the batteries anyway." I should not have that attitude in life! I should remember to STOP! SLOW DOWN! INSERT THE BATTERIES! and remember that life can give me a present at any time!! Chelsea came on the trip with my Dad and me, so it was a treat to have her sweet disposition and laughter along with us. She gave my Dad some entertainment along the way. My Dad has made almost 30 trips to Baltimore and it must be running him ragged!
Chelsea got a call from her Dad and step-mom last night. Her nanny is ailing and in the hospital. She may not make it. If you are of the praying kind, please say a prayer for her nanny (her step-mom's mom). Chel's is close to her nanny. She lived in the home with Chels for a number of years before she went into a nursing home and she is a member of their immediate family. Please say a prayer for Chel's family also. It is not an easy time for them. They are living out of a hotel still.
I am off to do housework and shopping that I have severely neglected. Chelsea is going to help me. Maybe that will make it easier. Hope you see your rainbow today....